Monday, December 8, 2008

Diagnosis

Langerhans Cell Histiocytosis

That is the official diagnosis right now and I am being referred to another specialist at Primary Children's Hospital. I had to look it up...just like my surgeon. I guess it is extremely rare. Here is some information I found about it. There is a lot of information on the web but this was the least scary to me.

What Is Langerhans Cell Histiocytosis? In Langerhans cell histiocytosis, certain white blood cells, called Langerhans cells, grow out of control. In a healthy person, these cells help defend against infection. But in histiocytosis, the cells multiply so quickly that they build up and can damage the body instead of protect it. Except for their rapid growth, the cells are normal. This disease is not cancer. But it is similar. Doctors who treat cancer and blood diseases also treat histiocytosis.

Some people with the disease have excess cells and damage in only one site or organ in their bodies. Others have excess cells in many places throughout their bodies. The bones are the most common sites of damage - mainly the bones in the skull but also in other places, such as the spine, arms and legs. This disease can affect many body systems. About 80% to 90% of children recover from this disease with treatment. Sometimes it goes away slowly on its own. It can be serious, even fatal in severe cases. It can also come back later in life.

9 comments:

Dog Lover said...

Have you contacted the Histiocytosis Association of America? My 33 year old son has this disease and it has been aggressive. I presume one of your children has it but could not determine since this is the first time I have seen your blog. A Google Alert to Langerhans Cell Histiocytosis brought it to my attention. Be assertive in getting treatment as quickly as possible.

AllMyKs said...

It is 4:30 am and I am up thinking about you and Grant. We are here for you!

T-Ray said...

What the heck! I have never heard of that. I hope that he will stay fine. You know I am here for you if you need me.

jamie hixon said...

Wow. I hope he has a mild case and I hope he is recovered already.

Mrs. Brecheisen said...

Definitely contact that society, and see if there are any online forums so you can chat with other parents. We're really hoping for the best for you and Grant.

Jake and Jessica Fillmore said...
This comment has been removed by the author.
Jake and Jessica Fillmore said...

Hi Borgeous family! Mind if we add you to our blogging buddies? Oh and if you want to, please post your email so I can send you an invite- we are going private on our blog soon ;) thanks!

Becky said...

Kristy! I wish I could be there to help you out! We are praying for you all.

Brynley said...

I got your blog from Jessica mine if I read?? I'm glad grant is doing alright.